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    Last Updated: 10/30/2025

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    MediFind found 14 doctor with experience in Clouston Syndrome near Saint Louis, MO. Of these, 12 are Experienced, 1 are Advanced and 1 are Elite.

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    14 providers found
      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics
      Elite in Clouston Syndrome
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology
      Saint Louis, MO 
       (0.1 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English

      Lamiaa Hamie is a Dermatologist in Saint Louis, Missouri. Dr. Hamie has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Sebaceous Adenoma, Epidermolytic Palmoplantar Keratoderma, and Aplasia Cutis Congenita.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1 Childrens Pl, Div Im Dermatology, Ste 2a And 2d, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Susan Bayliss is a Dermatologist in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Linear Nevus Sebaceous Syndrome, Osteopoikilosis, and Familial Multiple Lipomatosis.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Washington University

      1 Childrens Pl, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Katherine King is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. King is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Cardiomyopathic Lentiginosis, Familial Multiple Lipomatosis, Aplasia Cutis Congenita, and Clouston Syndrome. Dr. King is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1 Childrens Pl, Div Neurology Pediatrics, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      David Gutmann is a Neurologist in Saint Louis, Missouri. Dr. Gutmann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Optic Glioma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Glioma.

      Experienced in Clouston Syndrome
      Pediatric Endocrinology
      Experienced in Clouston Syndrome
      Pediatric Endocrinology
      1 Childrens Pl, Div Ped Endocrinology And Diabetes, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Stephen Stone is a Pediatric Endocrinologist in Saint Louis, Missouri. Dr. Stone is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Type A Insulin Resistance Syndrome, Acanthosis Nigricans, Wolfram Syndrome, and Diabetes Insipidus (DI).

      Experienced in Clouston Syndrome
      Neonatology | Pediatrics
      Experienced in Clouston Syndrome
      Neonatology | Pediatrics
      1 Childrens Pl, Div Ped Newborn Medicine, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Wambach is a Neonatologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Wambach is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Infant Respiratory Distress Syndrome, High Blood Pressure in Infants, CHARGE Syndrome, and Arthrogryposis Multiplex Congenita. Dr. Wambach is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Caroline Mann is a Dermatologist in Saint Louis, Missouri. Dr. Mann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Epidermal Nevus, Graham-Little-Piccardi-Lassueur Syndrome, Actinic Keratosis, and Psoriasis. Dr. Mann is currently accepting new patients.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Carrie Coughlin is a Dermatologist in Saint Louis, Missouri. Dr. Coughlin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Comedones, Neurocutaneous Melanosis, and Squamous Cell Skin Carcinoma.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English

      Amjad Samara is a Neurologist in Saint Louis, Missouri. Dr. Samara is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Wolfram Syndrome, Optic Nerve Atrophy, Metastatic Brain Tumor, Neurofibromatosis, and Gamma Knife Radiosurgery.

      Experienced in Clouston Syndrome
      Neuroradiology | Radiology
      Experienced in Clouston Syndrome
      Neuroradiology | Radiology

      Washington University

      510 S Kingshighway Blvd, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English

      Ali Mian is a Neuroradiologist and a Radiologist in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Choroid Plexus Cyst, Pediatric Low-Grade Glioma (pLGG), Hydrocephalus, and Subarachnoid Hemorrhage.

      Experienced in Clouston Syndrome
      Pediatrics | Anesthesiology
      Experienced in Clouston Syndrome
      Pediatrics | Anesthesiology
      1 Childrens Pl # 3s34, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English

      Jason Maynes is a Pediatrics specialist and an Anesthesiologist in Saint Louis, Missouri. Dr. Maynes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Cerebral Hypoxia, Ellis-Van Creveld Syndrome, Acute Pain, and Multisystem Inflammatory Syndrome in Children (MIS-C).

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics

      Ssm Health Care Group

      10101 Woodfield Ln, 
      Saint Louis, MO 
       (11.5 miles away)
      Languages Spoken:
      English, French
      Accepting New Patients

      Elaine Siegfried is a Dermatologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Siegfried is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Atopic Dermatitis, Molluscum Contagiosum, Aplasia Cutis Congenita, and Clouston Syndrome. Dr. Siegfried is currently accepting new patients.

      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Experienced in Clouston Syndrome
      Medical Genetics | Pediatrics

      Ssm Health Care Group

      10101 Woodfield Ln, 
      Saint Louis, MO 
       (11.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephen Braddock is a Medical Genetics specialist and a Pediatrics provider in Saint Louis, Missouri. Dr. Braddock is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Chromosome 20 Trisomy, Coloboma, Cerebellar Hypoplasia, and CHARGE Syndrome. Dr. Braddock is currently accepting new patients.

      Showing 1-14 of 14

      Last Updated: 10/30/2025

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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