The 20 Best Clouston Syndrome Doctors Near Me in Saint Louis, MO

Find the Top Clouston Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Clouston Syndrome near Saint Louis, MO. Of these, 13 are Experienced, 1 are Advanced and 1 are Elite.

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15 providers found
    Elite in Clouston Syndrome
    Medical Genetics | Pediatrics
    Elite in Clouston Syndrome
    Medical Genetics | Pediatrics

    Washington University

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Dorothy Grange is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Grange is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias. Dr. Grange is currently accepting new patients.

    Advanced in Clouston Syndrome
    Dermatology | Pediatrics
    Advanced in Clouston Syndrome
    Dermatology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Elaine Siegfried diagnoses and treats skin-related disorders in infants and children. She specializes in treatments for atopic dermatitis and other eczemas, psoriasis, and vascular birthmarks. She participates in clinical trials for new treatments for eczema and psoriasis. Dr. Siegfried is interested in research investigating atopic dermatitis and pediatric drug development. She is a professor of pediatrics and dermatology in the Department of Pediatrics, Division of Dermatology, at Saint Louis University School of Medicine. Dr. Siegfried is a past president and director of the American Board of Dermatology. She serves on the editorial board of Dermatology Times. Her memberships include the Society for Pediatric Dermatology, the American Academy of Dermatology, the National Eczema Association and The National Foundation for Ectodermal Dysplasias. Prior to earning her medical degree, Dr. Siegfried designed her undergraduate major, which was scientific art. Dr. Siegfried is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Atopic Dermatitis, Molluscum Contagiosum, Aplasia Cutis Congenita, and Clouston Syndrome. Dr. Siegfried is board certified in American Board Of Dermatology , American Board Of Dermatology/Pediatric Dermatology , and Missouri State Board Of Registration.

    Experienced in Clouston Syndrome
    Dermatology | Pediatrics
    Experienced in Clouston Syndrome
    Dermatology | Pediatrics

    SSM Health Cardinal Glennon Pediatrics Specialty Services - Grand Boulevard

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Lamiaa Hamie is a fellowship-trained pediatric dermatologist who provides expert care for patients from birth to age 25. She specializes in the diagnosis and treatment of common and complex skin, hair, and nail conditions, including eczema, psoriasis, acne, vitiligo, hemangiomas, birthmarks, and skin infections. Dr. Hamie offers a range of procedural services, such as skin biopsies, cryotherapy, laser treatments for vascular lesions, scars, and infections, as well as patch testing. Her clinical and research interests focus on atopic dermatitis and pediatric psoriasis, with a particular emphasis on complex and treatment-resistant cases. With a commitment to evidence-based care and family-centered education, Dr. Hamie strives to empower patients and families with the knowledge and tools they need to manage skin conditions confidently. She is passionate about advancing pediatric dermatology through research and emerging therapies. Dr. Hamie is an assistant professor Department of Pediatrics, Division of Pediatric Dermatology, at Saint Louis School of Medicine. She is a recognized expert in her field, having received multiple awards and authored numerous peer-reviewed papers and journal articles. Dr. Hamie is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Sebaceous Adenoma, Epidermolytic Palmoplantar Keratoderma, and Clouston Syndrome. Dr. Hamie is board certified in Drug Enforcement Administration , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Learn about our expert tiers
    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Susan Bayliss is a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Bayliss is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Epidermal Nevus, Neurocutaneous Melanosis, Legius Syndrome, and Cardiofaciocutaneous Syndrome.

    Experienced in Clouston Syndrome
    Neuroradiology
    Experienced in Clouston Syndrome
    Neuroradiology

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Ali Mian is a Neuroradiologist practicing medicine in Saint Louis, Missouri. Dr. Mian is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Choroid Plexus Cyst, Hydrocephalus, Pediatric Low-Grade Glioma (pLGG), and Clouston Syndrome.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Barnes Hospital Washington University

    510 S Kingshighway Blvd, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Sammy Droubi is a Radiologist practicing medicine in Saint Louis, Missouri. Dr. Droubi is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Febrile Neutropenia.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics

    Medical Genetics At SSM Health Cardinal Glennon Children's Hospital

    1465 S. Grand Blvd., 
    St. Louis, MO 
     (2.2 miles away)
    Languages Spoken:
    English

    Dr. Stephen Braddock provides genetic evaluations, diagnoses, and counseling for patients of all ages. This includes services not exclusive to pediatric patients, but also prenatal counseling, cancer counseling, and adult genetic disorders. He specializes in delineation of new multiple malformation syndromes, dysmorphology, prevalence and variation of prenatal teratogen exposures and birth defects, and fetal alcohol syndrome. His research interests include teratology, fetal alcohol syndrome, and dysmorphology/syndrome delineation. Dr. Braddock is director of medical genetics and a professor in the Department of Pediatrics, Division of Medical Genetics, at Saint Louis University School of Medicine. He is a fellow of the American College of Medical Genetics and Genomics, and the American Academy of Pediatrics. He is a member of the American Society of Human Genetics, the Teratology Society, and the Organization of Teratogen Information Services. Dr. Braddock is a sports history/trivia buff, particularly baseball history. He owns two Babe Ruth baseball cards. Dr. Braddock is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Chromosome 20 Trisomy, Cerebellar Hypoplasia, Coloboma, and CHARGE Syndrome. Dr. Braddock is board certified in American Board Of Medical Genetics & Genomics , American Board Of Pediatrics , Drug Enforcement Administration , Illinois Department Of Financial & Professional Regulation , Missouri Dept Of Health/Narcotics&Dangerous Drugs , and Missouri State Board Of Registration.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    David Gutmann is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Gutmann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Optic Glioma, Neurofibromatosis Type 1 (NF1), and Glioma.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Washington University

    660 S Euclid Ave, 
    Saint Louis, MO 
     (3.5 miles away)
    Languages Spoken:
    English

    Amjad Samara is a Neurologist practicing medicine in Saint Louis, Missouri. Dr. Samara is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Wolfram Syndrome, Optic Nerve Atrophy, Metastatic Brain Tumor, Multiple Sclerosis (MS), and Gamma Knife Radiosurgery.

    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    Experienced in Clouston Syndrome
    Medical Genetics | Pediatrics
    1 Childrens Pl, Div Ped Genetics And Genomic Med, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Katherine King is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. King is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Cardiomyopathic Lentiginosis, Legius Syndrome, Cardiofaciocutaneous Syndrome, and Familial Multiple Lipomatosis. Dr. King is currently accepting new patients.

    Experienced in Clouston Syndrome
    Neonatology | Pediatrics
    Experienced in Clouston Syndrome
    Neonatology | Pediatrics

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Jennifer Wambach is a Neonatologist and a Pediatrics provider practicing medicine in Saint Louis, Missouri. Dr. Wambach is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Infant Respiratory Distress Syndrome, CHARGE Syndrome, High Blood Pressure in Infants, and Arthrogryposis Multiplex Congenita.

    Experienced in Clouston Syndrome
    Anesthesiology
    Experienced in Clouston Syndrome
    Anesthesiology

    St. Louis Children's Hospital

    1 Childrens Pl, 
    Saint Louis, MO 
     (3.6 miles away)
    Languages Spoken:
    English

    Jason Maynes is an Anesthesiologist practicing medicine in Saint Louis, Missouri. Dr. Maynes is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His clinical expertise encompasses Cerebral Hypoxia, Ellis-Van Creveld Syndrome, Infantile Pneumothorax, and Acute Pain.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome

    Office

    1 Childrens Pl Ste 4S20, 
    Saint Louis, MO 
     (3.7 miles away)
    Languages Spoken:
    English

    Jennifer Strahle is a Neurosurgery provider practicing medicine in Saint Louis, Missouri. Dr. Strahle is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Chiari Malformation Type 2, Syringomyelia, Chiari Malformation, Posterior Fossa Decompression, and Endoscopy.

    Experienced in Clouston Syndrome
    Experienced in Clouston Syndrome
    3844 S Lindbergh Blvd # 240, 
    Saint Louis, MO 
     (13.5 miles away)
    Languages Spoken:
    English

    Carrie Coughlin is a Dermatologist practicing medicine in Saint Louis, Missouri. Dr. Coughlin is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Giant Congenital Melanocytic Nevus, Comedones, Neurocutaneous Melanosis, and Squamous Cell Skin Carcinoma.

    Experienced in Clouston Syndrome
    Dermatology
    Experienced in Clouston Syndrome
    Dermatology
    969 N Mason Rd # 225, 
    Saint Louis, MO 
     (14.2 miles away)
    Languages Spoken:
    English

    Caroline Mann is a Dermatologist practicing medicine in Saint Louis, Missouri. Dr. Mann is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Neurocutaneous Melanosis, Epidermal Nevus, Graham-Little-Piccardi-Lassueur Syndrome, and Actinic Keratosis.

    Showing 1-15 of 15

    Last Updated: 04/28/2026

    What is the definition of Clouston Syndrome?

    Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

    When should I see a Clouston Syndrome doctor near Saint Louis, MO?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Clouston Syndrome doctor near Saint Louis, MO?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Clouston Syndrome doctors near Saint Louis, MO?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Clouston Syndrome doctors near Saint Louis, MO?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Clouston Syndrome doctor near Saint Louis, MO?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Clouston Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Clouston Syndrome doctor near Saint Louis, MO?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Clouston Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Clouston Syndrome doctors near Saint Louis, MO?

    Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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